Marcel - only six years and communication in his own way.

He says only two words: “mom” and “baba”. It is not much, but behind them are emotions, reactions and the need for closeness. Contact with him takes time and attentiveness, but it is possible. Marcel functions in a world where the constant presence of the other person is necessary. Every day is based on care, rhythm and security. What does he face on a daily basis? Marcel has a very rare genetic syndrome - Alfie syndrome. The disease affects its development and ability to communicate. He doesn't speak beyond individual words and is completely dependent on the caregiver in his daily functioning. It requires round-the-clock care, feeding, dressing and assistance with all basic activities.